Welcome to Miles and Munchies for Sophie!
Hiking to find a cure for MCTO.
Welcome to Miles and Munchies for Sophie!
Hiking to find a cure for MCTO.
About MCTO
Sophie Rosenberg and her fight of MCTO
Sophie Rosenberg is a 4-year-old girl who lives in Boulder, CO. Sophie is the sweetest and kindest little girl I know. She was misdiagnosed with Arthritis at a young age, but they later realized that it was actually Multicentric Carpotarsal Osteolysis or MCTO, an extremely rare genetic disorder that causes the disappearance of the bones in her joints over time, currently affecting her hands and feet, and progressively will continue to limit her mobility and function in others. There is not much information on this disease due to only about 30 cases ever recorded. It is known to lead to kidney failure and progresses as she ages. She needs help getting up the stairs and has to wear ankle braces in order to try to walk properly. She sleeps wearing night splits on her hands and feet as well. It will only get worse unless a therapeutic is discovered. Sophies Neighborhood was started by Sophie's parents to try to raise enough money to find a cure. We are trying to help her. We are fundraising by hiking. She is an extremely resilient girl and if you would be willing to donate anything, even if it is small, it would mean so much to me. PLEASE CONSIDER SPONSORING OUR HIKE BY DONATING AS MUCH AS YOU FEEL YOU CAN!!